Claire Wineland, YouTube star and activist, dies at 21


Claire Wineland, 21, became renowned for her posts about illness and mortality on social media.

It is with heavy hearts that we report the death of Claire Wineland, a 21-year-old girl who chronicled her battle with cystic fibrosis, "an inherited life-threatening disorder that damages the lungs and digestive system", on YouTube for the past year.

She died after a lung transplant partly crowdfunded by her followers.

Cystic fibrosis is a genetic lung disease, the progressive disease creates too much mucus, trapping infections in the body and blocking the airways in the lungs. There is no cure for the disease, but Wineland had hoped that a double lung transplant would improve her prognosis and extend her life.

She saved the lives of two people by donating her kidneys right before she was taken off life support.

You sure made the whole world proud of you Claire! "I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent", she wrote in an Instagram post.

"Life isn't just about being happy".

Wineland also liked to focus on the aspects of her life that did not involve her illness. Among her many words of wisdom, Wineland once said, "Beauty is found everywhere and once you stop trying to run from your life, once you start taking pride in it and learning how to give back, you will be completely free".

"The quality of our life is not determined by whether we are healthy or sick but by what we have to offer to the world around us", her bio on the Claire's Place Foundation website read.

Following the transplant, she suffered a stroke.

Over time, she launched her YouTube channel, which was signed by more than 250 thousand people.

On August 26, she received word that she was officially off the waiting list and going into surgery.

She also endorsed Senator Bernie Sanders for President of the United States in the 2016 election. On Sunday evening, she passed away with her parents by her side. "The fact that they responded so quickly was quite miraculous and she survived the decompressive craniectomy but is still in an acute neuropathic situation and in a medically induced coma". I do not want to fight for a life that consists only of self care, I would rather die than live just for the sake of living.

Ms McHolm said Wineland was "loved all over the world" and a "red hot spark of inspiration and joy".

Wineland had grown up being told by doctors she would most likely not reach beyond her teenage years as she had cystic fibrosis, a degenerative condition largely affecting the lungs. "Really. I mean that seriously", she said. Follow INSIDER on Facebook.